The association cblC aps aims to protect the rights of individuals affected by this condition, promote their social integration, and improve the quality of life for both patients and their families.
Listed below are the key projects funded or co-funded by the Association in order to achieve the aforementioned objectives:
Other projects of the Association
projects in the social sphere
Project “Nave Italia”
As part of the “SeaBlings – On the Same Wavelength” project—promoted by the Bambino Gesù Pediatric Hospital in Rome and the Tender to Nave Italia Foundation—every day has become a blend of emotions, a sense of connection, and discovery.
Emergency Response
L’associazione cblC aps si prefigge di monitorare e affrontare problematiche di carenze dei farmaci salvavita necessari per la terapia della patologia.
Di seguito sono elencati i principali progetti realizzati dall’Associazione in questi anni al fine di raggiungere le finalità sopra indicate:
supply shortage Hydroxicobalamin 2022
In 2022, thanks to the collaborative efforts of the association, the medical-scientific community, and public institutions, cblC APS also succeeded in addressing a major critical issue: the discontinuation of the sale in Italy of a life-saving medication based on hydroxocobalamin.
